The SCD™ Knowledge Base

Society for Inflammatory Bowel Disease Rights

In a moment of greater than usual brilliance, Elaine decided that we should have a Society for Inflammatory Bowel Disease Rights, much like the Society for Diabetic Rights. We've never quite gotten around to ratifying a charter, but it's not for lack of input:

t writes:
I have the right not to be poisoned by the food and drug industries.
I have the right to participate in making decisions about my own medical care.
I have the right to be heard by the medical community.
I have the right to listen to my own body.
I have the right to keep my body parts.
I have the right to decide which bugs are welcome to take up residence in me, and which aren't....

Elaine writes:
I like your list of rights. And here are a few others.

I have a right to be treated by a doctor who understands the effect of the wrong food on my intestinal tract.

I have a right to demand that medical associations give a course of continuing education on the integrated science in Breaking the Vicious Cycle.

I have a right to demand that governments ask for accountability when they increase the amount of money being spent on chemotherapy which, without correct diet information, prolongs life but robs the patient of quality life and does not result in improving the condition.

I have a right to demand health care along with medical care.

I have a right to properly trained nutritionists instead of those who are blinded by a "one size fits all' food pyramid.

I have a right to receive support from gastroenterologists when I feed my child nutritious food instead of the fast food and empty calorie food that they laughingly think is just fine and which is sold in hospital fast food outlets.

I have a right to authoritatively refuse to send my child, after a colonoscopy, to McDonald's.

I have a right to be heard by a Congressional Committee about the indifference of the medical-industrial complex to available relief and reversal of symptoms by feeding the proper diet.

I have the right to demand that the Crohns and Colitis Assoc. reveal the source of their funds whether it be pharmaceutical companies or food companies and to stop deceiving patients that they are trying to find a cure when all they desire is another drug.

And that is just for starters...

Bob writes:
I have the right not to be experimented upon.
I have the right to be left, if I want to.
I have the right not to let money dictate my treatment.
I have the right to get a second, third, fourth ect opinion until I'm satisfied.
I have the right not to be talked down to.
I have the right to seek alternative remedies, if I so choose.
I have the right to be believed, if I say I am sick.
I have the right to expect my doctor to take the same drugs as me, so that he will know what I'm going through!!!!

And Carlos writes:
I have the right to decide not listen anymore the gluten free theory and not read anymore the lists or books of gluten free food from the celiac asociations, and its lies about the precision of the method of gluten analysis detection.

Originally from the Long Island listserve.