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SCD Survey for Roger Jackson MD

Roger Jackson MD writes:--
Hello I am new and an internist and wrote to the list recently and described how my wife had a dramatic total remission of her near universal UC of 10 yrs duration after 10 mos. of the SCD diet. Her last colonoscopy was entirely normal--even the biopsies. We are so appreciative! My question is this. How hard would it be to tabulate 25-50 self reported
hard confirmed remissions due to the diet.? By hard confirmed I mean follow-up colonoscopy or small bowel follow through and/or fistula closing etc.

I am suggesting these end points to avoid the symptom improvement as the only objective response. (It's difficult to convince anyone with symptom improvement alone.) I have discovered 7-8 case reports of this type on the Amazon reviewer pages for Elaine's book. If several dozen of these self reported firm cases could be collected, a medical report could surely be done somewhere to arouse physician interest in a randomized controlled trial. I realize this is old hat to you veterans, but something needs to be done to awaken the medical world that this SCD diet may save ~50% of IBD patients a lot of suffering.

At the very least we could add a reference in Medline for physicians and health personnel, and probably I and other MD's could make presentations to our local medical hospital staff meetings. Every MD has been taught "No diet makes a difference" and it is hard to get their attention. However, remember a young Australian MD set out to show the world 15 years ago that peptic ulcers were caused by a bacteria-- and was laughed at. Now all the white coats act like we have known this all along! I for one am convinced enough that I would suggest SCD as a trial to all IBD patients. Do you think we could find these confirmed responses?

IBD Questionnaire for self-reporting your case. CONFIDENTIAL -For aggregate survey use only, respondent name and email address will not be shared anywhere.

               
Your Email Address
Your Diagnosis
Repeat Email Address
Your Name or Initials

Age
at present

Age at
onset of Disease

Duration of illness
Years Months

Duration of SCD
Years Months

Diagnosis before starting SCD by

Follow up procedure carried out after improvement on SCD

Please give a few words summary
on the follow up proceedure findings -
i.e. No colitis found or improved/ colitis still present, or worse, etc
Colonoscopy

Colonoscopy

 
X- Rays
X- Rays
Biopsies
Biopsies
Is remission maintained greater than 75% improvement
Duration of remission
Years Months
 Are you maintaining
remission without -

Maintenance Steroids

TNF blockers (Remicade)

Immunosuppressive
(Methotrexate, immuran etc)

In remission are you continuing other
drugs such as sulfa's - Asacol, Azulfidine, mesalamine, pentasa or their topical enemas or suppositories  


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Information published on Breaking the Vicious Cycle Web site is intended to support the book Breaking the vicious cycle by Elaine Gottschall and is for information purposes only. It is not the intention of this site to diagnose, prescribe, or replace medical care. Your doctor or nutrition expert should be consulted before undertaking a radical change of diet.
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